Where to begin?

I am a young man at heart but my body tells me other wise. When I was 45 yrs. old I was diagnosed with  Scleroderma and Raynard's Phenomenon. I want to tell other patients that there is life after being terminally evaluated.  For some unexplained reason when I was down to the 4 months left to live, my life turned around.  My skin was as hard as a magazine cover on both arms, a drawn tight face ( not a wrinkle in sight), shiny flat white legs and hands that were curling into a tight fist was to be my existence. Tired, depressed, lethorgic, all my joints hurt to move, sit or stand. My mouth was tightening as well as my throat. My teeth were becoming loose and I put lotions and creams all over my body to help with the dryness I was having. Was this to be what was left of my life.?