Tired all the Time.

I realise my body is reacting to muscular and synopsis changes constantly from within, which also means my body is always working to repair itself. Some days with much enthusiasm I am able to perform my walks, housecleaning and meal preparations. Other days it is a chore to get up and move about.  Don't let depression rob you of being glad you are alive. Celebrate the small victories. Today I walked to the end of the block and back. The sun was shining and the fresh air was invigorating.  Yes I cursed as I slowly got dressed, tied my shoes with my gnarly twisted hands but with deep breaths I started my walk.  When I got home I started my regiment of stretches and felt better for the day.  Knowing your limitations helps in how you deal with obstacles.  Not that you should let your limitations dictate what you can not or want to do but rather make it game where you challenge yourself.  Some days this works for you and makes you worth while other days you will curse everything and anything. Don't give up! Being tired has its pluses.  I get to have a rest in the afternoon, slows me down to appreciate what I do have and makes me thankful every day that I am here.

Where to begin?

I am a young man at heart but my body tells me other wise. When I was 45 yrs. old I was diagnosed with  Scleroderma and Raynard's Phenomenon. I want to tell other patients that there is life after being terminally evaluated.  For some unexplained reason when I was down to the 4 months left to live, my life turned around.  My skin was as hard as a magazine cover on both arms, a drawn tight face ( not a wrinkle in sight), shiny flat white legs and hands that were curling into a tight fist was to be my existence. Tired, depressed, lethorgic, all my joints hurt to move, sit or stand. My mouth was tightening as well as my throat. My teeth were becoming loose and I put lotions and creams all over my body to help with the dryness I was having. Was this to be what was left of my life.?